TTC plans turned upside down :(

so here is where the story starts when i was 36 weeks with DD 17 months i was told i had pre clampsia and was induced at 39 weeks and had my gorgous baby girl.

anyway since having DD my liver enzymes have remained dangerously high and all past doctors have told me that it is from "fatty liver disease" (a disease mstly caused from too much alchol intake or obesity) which i dont think i have.

my partner and i have been TTC for almost 2 months and have recently moved so i saw a new doc today about the issue and she has told me that unless i am already pregnant then i should stop TTC as i have to have alot of tests to confirm what she believes it may be( crohn's disease http://en.wikipedia.org/wiki/Crohn's_disease) and if it is this then they will need to get me on the right meds which can be dangerous if i am pregnant.

i am really upset about this as it could be years before this all happens and my DF and i are really ready for baby #2 now. what will happen if i do fall pregnant...will it be a high risk pregnany??? i would like to know any info i can

thanks in advance

First things first....gbh hugs to you xx

I have crohn's disease, was diagnosed 10 years ago. I haven't had any issues with it in the last few years, no flares up, nothing smile I think too it depends on the type of crohn's you may have, the severity of it & what medication you may have to take, I know my crohn's is not as bad as it is for some. I have been lucky and not had any bowel removed or such severe ops to help, my crohn's is under control by the medication and diet.

When I told my dr we had decided to start a family they were concerned but we got all positive answers about it, in fact we were told crohn's is less likely to cause any problems whilst being pregnant! Yayyy

After losing twins 3 years ago I thought crohn's may have been a factor but it wasn't. It was just natures way. I have since had a gorgeous healthy lil boy and we have another bub on the way.

I think you need to find out all that you can about crohn's, the severity of it & find out about the medication you may need to take depending on how bad it is.

Life can still go on as normal, so please don't give up. I believe pregnancy is not high risk if you have crohns because if it was, then I would not have tried for # 2. But i was never ever told to not get pregancy. You just may need to be monitored a lot closer but it's all worth it

Sorry if I haven't really helped, I truly wish and hope the best for you. If you are not getting help or the answers you need then I would see another doc. I am in qld and the doc I see actually specialises in crohn's so I know I am in good hands.

I'm here if you need me or want to chat smile

I just wanted to add as pp said, get all your tests done. Get the colonoscopy and endoscopys done, get the blood tests you name it. Once you have answers then get as much info abbut the medication as possible, side effects etc etc. Don't let it run your life or get you down as it will be ok. It is manageable smile

thanks guys u really helped, as we already started trying we have to now stop so if im already pregnant nothing we can do really.... i willl be happy to have a bub now then do whatever i need to after bub comes.

as for a second opinion, this is my 3rd and all say possible crohn's as my sister was diagnosed with it years ago, she has had a bunch of problems getting her meds right and even eye surgury to repair her rectarer in her eye which was damaged by her illness.

i did have 1 apt with a specialist about 9 months ago but gave up cos i didnt feel i needed to see him and i didnt like him, also i will have t go through the public system as i dont have private insurance sad so wait could be 12 months sad

so with all that said i really dont know what i should do sad

I know it is not cheap and maybe something you can't afford but it might be worth saving every cent to book a specialist appointment privately. I am so surprised you have to wait so long! This is not just your typical walk in the park illness!

i know i should have had this all sorted out over a year ago but my lil girl was ill alot when she was younger and i prioritised her over me. also i hate having tests done (blood tests i dont mind) but any others i dont like cos i would have noone to help with my lil girl while they are being done and her dad needs to work.

the specialist i saw once was private and i would have only had to pay for any procedures but i just didnt like him he made me feel stupid... but my current doc said she would find me a good one to see closer to home...its just the waiting game that gets to me and the "do not TTC" sad

Hi, sorry to hear this. The only advice I can give you now is keep going back no matter what!! It took docs and 2 hospitals to run test after test, 3 months later to tell me I had crohn's. I was using the public system (am now private) & got the run around so much, I was seeing diff docs, was told oh no you just have IBS, oh no maybe not etc etc. I wouldn't give up as I was so sick, lost so much weight, basically I had every symptom crohn's described except fever. But finally I got answers and I tell you it was worth the time it took because i could then get on with my life!!

So google as much as you can. Again it depends on the severity of the type of crohn's you have (if you do have it) so will depend on the medication you may have to take. I am on mecurocaptine puri nethol 6mp and take it 3 days a week. There is no evidence or proof that it causes any problems for baby.

I know when I was pregnant with the twins 3 years ago I had an issue with my eyes, the pupil was basically folding itself and it was so painful, all they could do was give me steroid eye drops which really helped. It's common apparently and it could happen again but thank goodness so far it hasn't. It was a horrible time!!! I had heard there are worse cases, I was lucky

Please don't give up no matter what. Keep going back. See a diff GP if you have too so they get the ball rolling and do the tests. Are you in qld? I just wish you had someone who actually specialises in this disease so you can get the help and answers. Here if you need me hun

Hi, sorry to hear this. The only advice I can give you now is keep going back no matter what!! It took docs and 2 hospitals to run test after test, 3 months later to tell me I had crohn's. I was using the public system (am now private) & got the run around so much, I was seeing diff docs, was told oh no you just have IBS, oh no maybe not etc etc. I wouldn't give up as I was so sick, lost so much weight, basically I had every symptom crohn's described except fever. But finally I got answers and I tell you it was worth the time it took because i could then get on with my life!!

So google as much as you can. Again it depends on the severity of the type of crohn's you have (if you do have it) so will depend on the medication you may have to take. I am on mecurocaptine puri nethol 6mp and take it 3 days a week. There is no evidence or proof that it causes any problems for baby.

I know when I was pregnant with the twins 3 years ago I had an issue with my eyes, the pupil was basically folding itself and it was so painful, all they could do was give me steroid eye drops which really helped. It's common apparently and it could happen again but thank goodness so far it hasn't. It was a horrible time!!! I had heard there are worse cases, I was lucky

Please don't give up no matter what. Keep going back. See a diff GP if you have too so they get the ball rolling and do the tests. Are you in qld? I just wish you had someone who actually specialises in this disease so you can get the help and answers. Here if you need me hun

thanks hun wow, u must have been in great pain. the fact is im not in any pain or anything, all i really have is nausea, great discomfort when i need to go to the toilet and the extremely high liver enzymes...so nothhing to much i guess. that is why im not too concerned

my doctor has taken more bloods yesterday so i will go back and see her after then and see what she says oh and i havent had any weight loss

can't help too much but I know someone who has crohns and accidentally fell pregnant - they just monitored her a bit closer bubs was born happy, healthy and full term. She's now having a few problems but bubs is almost 3months old so I think its a few factors causing it to flare up.
not too sure if she stopped her meds while pregnant though- she was diagnosed years ago so that may also make a bit of a difference.

thanks hun

thanks hun wow, u must have been in great pain. the fact is im not in any pain or anything, all i really have is nausea, great discomfort when i need to go to the toilet and the extremely high liver enzymes...so nothhing to much i guess. that is why im not too concerned

my doctor has taken more bloods yesterday so i will go back and see her after then and see what she says oh and i havent had any weight loss

Good, no weight loss so good sign smile Then I hope it's not crohn's and whatever they find will be fixable/treatable. Hope you get results from the blood test soon. If its ibs then a good diet will really help smile

And like pp said, they know someone who has crohn's and fell pregnant and went on to have a healthy bub so the good news is it is possible to have bub no matter. You just get monitored closely smile

Let me know how things go ok, and remember if you're not getting the answers you need or help just go see another gp or hospital and nag them till you do. I did and glad I did!!! smile

Good, no weight loss so good sign smile Then I hope it's not crohn's and whatever they find will be fixable/treatable. Hope you get results from the blood test soon. If its ibs then a good diet will really help smile

And like pp said, they know someone who has crohn's and fell pregnant and went on to have a healthy bub so the good news is it is possible to have bub no matter. You just get monitored closely smile

Let me know how things go ok, and remember if you're not getting the answers you need or help just go see another gp or hospital and nag them till you do. I did and glad I did!!! smile

thanks hun and i am glad u got the answers u were looking for